Digital Psychological Wellbeing Interventions for Family Carers of Children and Adults With Intellectual and Developmental Disabilities: A Systematic Review.
Magda M Apanasionok, Andreas Paris, Joanna Griffin and 4 others
PMID 40642876WHAT IT FOUND
Digital wellbeing support for carers of people with intellectual disabilities is generally acceptable and often improves stress or mood, but the evidence is weak.
No single online programme is proven effective enough to recommend for routine clinical practice.
Key findings
01Most studies reported improvements in carer stress, anxiety or wellbeing, but several found no significant change on key outcomes, and the overall evidence quality is too low to recommend any specific intervention for practice.
02Carers found digital delivery helpful for accessing support despite barriers like transport or childcare, though technical issues and finding time to engage remained common problems.
03The review found no high-quality randomised trials; only one study met six of seven quality criteria, and most evidence comes from single-group pre-post designs or feasibility studies.
STILL TO COME
How it was doneWhat they foundWhat it means for OTs
Read the rest of this summary
You get three full summaries a month, free, and we do not ask for a card. Search, the TL;DRs and your library stay unlimited either way.
What it does not show
The evidence base is heterogeneous, with varied study designs, interventions, and outcome measures, preventing a meta-analysis. Only one randomised controlled trial met six of seven quality criteria, and many studies were single-group pre-post designs with no control group. Data extraction and initial screening were not independently performed by two reviewers due to time and volume constraints. Google Translate was used to screen and extract data from non-English papers, which may have introduced minor inaccuracies. Most studies were conducted in the USA, and few included carers of adults, limiting generalisability to other cultural contexts or populations. No studies sought opinions from the people with intellectual and developmental disabilities themselves.
Declared interests
Funded by Cerebra. Two authors (S.F. and R.P.H.) were lead authors of one included study (Flynn et al. 2020) and R.P.H. was a co-author of another (Lunsky et al. 2021). These authors were excluded from the review process for the studies they were involved in to manage potential bias.
The easy way to misread this
Do not assume that digital interventions are an effective clinical treatment for carer stress based on this review. The authors explicitly state that it is not possible to recommend any of the included interventions for practice because the evidence is emerging and of variable quality, with no single intervention showing strong support.