Consumer Priorities for Upper-Extremity Outcome Assessments.
Lauren J Christie, Laura Jolliffe, Brian A Beh and 4 others
PMID 42769335WHAT IT FOUND
Stroke survivors and caregivers valued clinician-rated arm movement, strength and hand tasks over biomarkers or general disability.
They preferred weekly in-person assessments during treatment.
Key findings
01Impairment assessments were chosen as reflecting priorities by 23 participants (76.7%), and common upper-limb activity assessments by 21 participants (70.0%).
02Biomarker measures were reported as reflecting priorities by 8 participants (26.7%) and were more commonly reported as not reflecting priorities.
03Of twenty-seven participants answering hypothetical trial questions, 17 preferred weekly assessments, and 12 preferred hospital outpatient assessments while 12 preferred home assessments.
STILL TO COME
How it was doneWhat they foundWhat it means for PTsWhat it means for OTs
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What it does not show
The survey included only 30 participants, so the results may not represent all stroke survivors or caregivers. Participants were recruited through online channels and snowball sampling, and only English-speaking respondents could take part because the survey was not translated. Many participants had limited experience with movement sensors, biomarkers and transcranial magnetic stimulation. The survey did not explore why biomarker measures were rated as less meaningful. Trial preferences were about a hypothetical study, not actual trial participation. The sample did not include international perspectives, particularly from settings where stroke rehabilitation models differ.
Declared interests
The study was supported by the Heart Foundation of Australia under grant 106762 for N.A.L. The investigators declared no non-financial disclosures.
The easy way to misread this
Do not read these ratings as evidence that the measures improve outcomes or are valid. They show what stroke survivors and caregivers preferred in a hypothetical trial, not how well any assessment works.