Community views of neurodiversity, models of disability and autism intervention: Mixed methods reveal shared goals and key tensions.
Patrick Dwyer, Ava N Gurba, Steven K Kapp and 5 others
PMID 39291753WHAT IT FOUND
Autism community participants linked neurodiversity support with societal change, not rejection of all individual supports.
Strong social-model supporters were open to adaptive-skill teaching and treating co-occurring conditions, and preferred communication beyond speech.
Key findings
01Higher neurodiversity support was associated with greater support for societal reform and supportive environments, and with less support for the medical model and normalization goals.
02Participants who endorsed a strong social model were still open to adaptive-skill goals and to curing or teaching skills for depression, epilepsy, and anxiety.
03Neurodiversity support was linked to preferring communication methods beyond verbal speech and to autistic people leading intervention goal-setting.
STILL TO COME
How it was doneWhat they foundWhat it means for OTsWhat it means for SLPs
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What it does not show
The sample was predominantly White, well-educated, and mostly from wealthy Anglophone countries, so it may not represent autism communities elsewhere. The autistic sample included few people with higher support needs: only seven autistic people with intellectual disabilities and five nonspeaking autistic people. Recruitment used social media and autism organizations, and neurodiversity proponents appeared more likely to participate, so the results may not reflect the whole autism community. The study did not use participatory research with non-academic community members, even though all primary qualitative coders were autistic. The study describes views and definitions, not treatment outcomes, so it cannot tell therapists which intervention goals improve function.
Declared interests
The authors declared no potential conflicts of interest. Funding was provided by the UC Davis MIND Institute. P.D.'s time was partially supported by an Autism Speaks / Royal Arch Masons CAPD Fellowship. L.H.H.'s time was partially supported by a UC Davis Dean Keith Simonton research award.
The easy way to misread this
Do not read these findings as evidence that neurodiversity-affirming interventions improve outcomes. The study reports community views on goals, not treatment effects, and it did not show that any specific intervention helped participants.
Summarised by AI from the full paper, without a clinician reviewing it. Check it against the source before it changes what you do. Read it on PubMed →