Caregiver Input to Optimize the Design of a Pediatric Care Planning Guide for Rehabilitation: Descriptive Study.
Mary A Khetani, Heather K Lim, Marya E Corden
PMID 29066421WHAT IT FOUND
Caregivers of young children mostly completed a phone care-planning guide: 22 of 25 set a goal and 24 of 25 identified strategies, but only 12 of 25 linked the steps into a full plan.
This is feasibility, not evidence that the guide improves participation.
Key findings
01All 25 caregivers completed step 1, 22 of 25 made a goal, 24 of 25 identified current strategies, 19 of 25 made new strategies, 12 of 25 linked the steps into an action plan, and 4 defined a clear time frame.
02Most caregivers made goals for home activities, and 24 of 25 identified strategies that modified the child's environment.
03Mean PEM+ completion time was 38 minutes, and nearly 77% (19/25) found the process useful.
STILL TO COME
How it was doneWhat they foundWhat it means for OTs
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What it does not show
The analysed sample was small and mostly white married non-Hispanic mothers, so it may not represent all caregivers. Some caregivers declined the phone interview, and some recordings were excluded for poor quality or lack of relevant content. The guide was completed by phone with research staff, not online without support, so provider contact may have influenced completion and ratings. Caregivers had already completed the participation measure twice, so they were familiar with it. The study did not test whether the guide changes care plans or child participation.
Declared interests
The authors declared no conflicts of interest.
The easy way to misread this
Do not conclude that PEM+ improves child participation or care planning outcomes. The study only asked caregivers to complete the process once by phone, and only 12 of 25 linked the steps into a full action plan.