OTSLPSurveyAutism : the international journal of research and practice2025

Caregiver concerns for autistic children differ between publicly funded educational and mental health settings: Findings from a community implementation-effectiveness trial.

Laurel R Benjamin, Aubyn C Stahmer, Anna Lau and 1 others

PMID 40375745

WHAT IT FOUND

Caregivers named aggression, social communication problems and attention problems among their top concerns.

Mental health caregivers reported more aggression; school caregivers reported more social problems and repetitive behaviors.

Key findings

01Aggression was reported by 61.8% of caregivers.

02Mental health caregivers reported externalizing problems more often than school caregivers (75.8% vs 50.0%) and aggression more often (74.5% vs 51.0%).

03School caregivers reported social problems more often than mental health caregivers (42.2% vs 29.3%) and restricted repetitive behaviors more often (21.4% vs 14.3%).

STILL TO COME

How it was doneWhat they foundWhat it means for OTsWhat it means for SLPs

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What it does not show

The findings are based only on caregiver reports, so children's own concerns were not measured. The study did not include enough clinical detail about the children, such as intellectual ability or existing supports. Families may have used more than one service system, but that was not measured. Caregivers were enrolled through providers receiving training in an intervention, which may have made some concerns more salient. The analysis compares groups at baseline, so it cannot show that any intervention changed caregiver concerns. Some concerns could be coded under more than one category, especially internalizing and social communication problems.

Declared interests

No potential conflicts of interest were declared. Funding came from a National Science Foundation Graduate Research Fellowship and National Institute of Mental Health grants R01MH111950 and R01MH111981.

The easy way to misread this

Do not read these caregiver priorities as evidence that an intervention worked. This was baseline descriptive data, and many concerns were mental health-related rather than autism-specific.

Summarised by AI from the full paper, without a clinician reviewing it. Check it against the source before it changes what you do. Read it on PubMed →