OTCohortJapan journal of nursing science : JJNS2025

Care needs and factors reducing caregiver burden for children with special health care needs in out-of-home care in Japan: An observational study.

Tomo Nonoyama, Koji Tamakoshi, Kazuteru Niinomi

PMID 40494569

WHAT IT FOUND

Children in Japanese infant homes with special healthcare needs required more weekly care time for feeding, sleep and bathing.

Over six months, care time increased, so a short stay may not reduce the burden they bring home.

Key findings

01Staff-reported screening identified 39.9% of 213 children as having special healthcare needs, and 55.3% of those children had no formal diagnosis.

02Children with special healthcare needs had significantly higher total care time than children without, and their care time increased significantly over six months.

03Care hours decreased for 19 of 73 children with special healthcare needs who stayed at least six months; in adjusted analysis, older age was associated with lower odds of reduction (OR = 0.86, 95% CI = 0.78 to 0.95), while higher total care hours six months earlier was associated with higher odds (OR = 1.13, 95% CI = 1.03 to 1.25).

STILL TO COME

How it was doneWhat they foundWhat it means for OTs

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What it does not show

Care hours and special healthcare needs were reported by infant home staff, not measured directly in children. The staff were professional caregivers, not family caregivers, so reported care time may not match family burden. The study covered 15 Japanese infant homes in one region, so results may not apply to other out-of-home care systems. Many children with special healthcare needs had no formal diagnosis, so the screener may capture care needs missed by diagnosis-based systems, but it also relies on staff judgement. The six-month change analysis used retrospective reports from records, and only children staying at least six months were included in the reduction analysis, which may introduce selection bias. The study did not test an intervention or follow children after discharge, so it cannot show that assessing or reducing daily care time improves placement stability.

The easy way to misread this

Do not conclude that keeping children in out-of-home care for less than six months reduces caregiver burden. Care time increased over six months for children with special healthcare needs, and only 19 of 73 children who stayed at least six months had reduced care hours.

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