Adolescent/Young Adult Self-Management and Independence Self-Report Scale: Preliminary psychometric findings.
Monique M Ridosh, Zoe Smith, William Adams and 6 others
PMID 38265130WHAT IT FOUND
In 159 adolescents and adults with spina bifida, preliminary data support the AMIS II SR self-report scale.
It separated everyday independence from condition-specific self-management, and participants reported more independence for condition tasks.
Key findings
01In 159 adolescents and adults with spina bifida, the AMIS II SR total scale and two subscales showed high internal consistency (alpha = .91 to .96), and a higher-order model with independent living and condition self-management factors fit the data well.
02Participants reported higher condition self-management scores (M = 4.59) than independent living scores (M = 3.50; mean difference = 1.13 on a 1-to-7 scale).
03In multivariate analysis, older age was associated with a 0.14 point increase in self-management per year, and non-myelomeningocele type was associated with a 0.79 point higher total self-management score.
STILL TO COME
How it was doneWhat they foundWhat it means for OTs
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What it does not show
The paper reports item analyses, reliability, and factor structure; it does not report a clinical trial or outcome changes. The sample was limited to people with spina bifida who could read and answer English questionnaires, and some sites excluded people with acute medical concerns, substantial cognitive or psychiatric conditions, or very low self-management needs. Missing data were substantial for some branching items: 21% were missing item 5 and 14% were missing item 9. Lesion level and ambulation were collapsed into broad categories after harmonization across sites, and the authors say this may have reduced precision for those variables. Attrition and non-participation were not fully comparable: in Illinois the 47 participants did not differ from the 23 non-participants on measured variables, Texas non-participants had greater learning needs, and Wisconsin data on invited non-participants were not available. Small race or ethnicity groups were retained for most analyses but excluded from some race comparisons, so findings by race are limited. The instrument is long, and some items apply only to subgroups, such as medication items for people who take medications.
Declared interests
No author conflict-of-interest declaration appears in the supplied text. The article is tagged as supported by NIH extramural and non-U.S. government research support.
The easy way to misread this
Do not treat the AMIS II SR as a proven tool that improves care or predicts outcomes. This paper tested how the questionnaire performed in existing self-report data from 159 people with spina bifida, not whether using it changed independence or clinical results.