Acceptability and Barriers of Exercise in Children With Osteogenesis Imperfecta.
Misha Gilani, Stacey Todd, Sze Choong Wong and 3 others
PMID 40980517WHAT IT FOUND
16 of 17 children said osteogenesis imperfecta made exercise harder, including fatigue, joint pain, weakness and fracture worry.
They preferred swimming, cycling and walking, and 2 of 17 would add no 30-minute weekly exercise.
Key findings
0116 of 17 respondents said having osteogenesis imperfecta made exercise more difficult, with barriers including joint pain (69%), muscle weakness (50%), tiredness or fatigue (75%), and concern about fractures (75%).
02When asked about adding 30 minutes of exercise per week, 2 of 17 said none, 5 said 1 to 2 times, 6 said 3 to 4 times, and 4 said more than 4 times.
03Exercise types respondents would like to participate in included swimming (71%), cycling (47%), walking (41%), dancing (35%), running (24%), team sports (24%), and gymnastics (18%).
STILL TO COME
How it was doneWhat they foundWhat it means for PTs
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What it does not show
Only 17 children were surveyed at one pediatric bone service between June and September 2019, so the results may not represent children with osteogenesis imperfecta elsewhere. The questionnaire used predefined closed questions and was completed by patients or parents or guardians, so responses may depend on who answered and may miss reasons behind choices. There was no control group, randomization, or tested exercise intervention, so the survey cannot show that exercise improves bone, muscle, mood, or function. Participants differed in mobility and treatment, including bisphosphonate therapy and pain relief, but the survey did not test whether these factors changed exercise tolerance or outcomes.
Declared interests
The investigators reported no financial or nonfinancial disclosures.
The easy way to misread this
Do not conclude that exercise is proven to improve bone or muscle health in osteogenesis imperfecta. This survey only asked 17 children about barriers and preferences, and it did not test an exercise program or measure outcomes.
Summarised by AI from the full paper, without a clinician reviewing it. Check it against the source before it changes what you do. Read it on PubMed →