A Sisterhood of Women: The Process of Co-Creating Recommendations for Improved Pessary Self-Management Support.
Lucy Dwyer, Sofia Tibuzzi, Kerrianne O'Rourke and 2 others
PMID 41355312WHAT IT FOUND
Eight women who already self-manage pessaries described barriers including painful insertion, limited pessary choice, conflicting information, stigma, and worry about losing clinic support.
They asked for practical written guidance, accessible follow-up, peer support, and care that acknowledges emotional impact.
Key findings
01Women described barriers to pessary self-management as physical demands, knowledge gaps, social support, service access, emotional impact, perceived self-efficacy, and how self-management was framed.
02Participants proposed high-quality written and visual information and ongoing accessible specialist support.
03Women's health physiotherapy was described as more supportive than pessary clinic care, with one participant saying it gave her hope.
STILL TO COME
How it was doneWhat they foundWhat it means for PTsWhat it means for RNs
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What it does not show
Eight women were recruited after a target of 10 could not be met, and the sample was self-selected from a national involvement panel. All participants were White, most were educated to degree level or above, and all already self-managed their pessary, so the findings may not represent women who have not self-managed or who have different backgrounds. Data saturation was not formally assessed, and the number of workshops was set by project time and resources. The researcher was a nurse with a special interest in pessary management and took part in the workshops, so her advocacy may have influenced discussion. Pessary practitioners were not involved in this co-creation study.
Declared interests
The work was supported by the National Institute of Health and Care Research (NIHR300519). Lucy Dwyer received a Clinical Doctoral Research Fellowship funded by Health Education England and NIHR and was a co-applicant on the NIHR/HTA funded TOPSY study. Rohna Kearney was clinical chief investigator and co-applicant on TOPSY. Sofia Tibuzzi, Kerrianne O'Rourke and Dawn Dowding declared no conflicts of interest.
The easy way to misread this
Do not read these co-created strategies as tested improvements in pessary self-management. They were developed by eight self-selected white women who already self-managed, so they are suggestions for research and service design, not evidence of benefit.