PTOTRNCohortThe American journal of hospice & palliative care2023

A Retrospective, Descriptive Study of Dyspnea Management in a Multidisciplinary Interstitial Lung Disease Clinic.

Laura van den Bosch, Ting Wang, Jeffrey A Bakal and 2 others

PMID 35484838

WHAT IT FOUND

In a real-world interstitial lung disease clinic, every patient received breathlessness self-management advice, and many got oxygen, pulmonary rehab, home care or opioids.

Dyspnea scores rose slightly near death, but no control group means benefit cannot be proven.

Key findings

01All 81 patients received symptom self-management advice in the clinic.

02Oxygen was used in 65 (80%) patients, including 48 (59%) already using it at the first clinic visit, and opioids were initiated in 34 (42%) patients during clinic enrolment.

03Median dyspnea scores rose slightly closer to death, with increases reaching significance only for eating and bowel movements.

STILL TO COME

How it was doneWhat they foundWhat it means for PTsWhat it means for OTsWhat it means for RNs

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What it does not show

Only patients who died were included, so the study says nothing about survivors or longer-term breathlessness trajectories. There was no control group, so hospital use and death in hospital cannot be attributed to the clinic model. It was a retrospective chart review, so records may be incomplete or inconsistent. The sample was small and had more advanced fibrosing interstitial lung disease than many registry studies. Not every visit had a breathlessness score, and scores for high-intensity activities were often missing near death. Only interventions recorded during clinic visits were captured, so care delivered outside the clinic may be missed. Oxygen access was limited by provincial funding criteria in some cases. Visit frequency was determined by clinical need and patient wishes, which may have affected the timing and sequence of interventions. Interventions were chosen by treating physicians using clinical judgement, and several were often given together, so the effect of any single component cannot be separated.

Declared interests

The authors declared no potential conflicts of interest and received no financial support for the research, authorship, or publication.

The easy way to misread this

Do not read the lower hospital death rate as proof the clinic model works. There was no control group, and the comparison was with historical cohorts, so patient selection and changing care could explain the difference.

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