SLPQualitativeAutism : the international journal of research and practice2025

'You feel part of something bigger': Stakeholders' experiences of a long-term community-academic participatory research partnership.

Elizabeth Pellicano, Catherine A Bent, Teresa Iacono and 3 others

PMID 40534283

WHAT IT FOUND

Partnership members valued shared inclusion goals and mutual learning but reported growing distress from fidelity checks and power imbalances.

Early educators felt excluded from decision-making and reduced to data collectors. Trust eroded over time due to poor communication and staff turnover, threatening long-term sustainability.

Key findings

01Shared values around inclusive practice and a commitment to research-underpinned care were central to the partnership's initial success and member engagement.

02Intervention fidelity checks caused significant anxiety and distress among educators, who felt judged and stressed by the monitoring process.

03Power imbalances and communication breakdowns led educators to feel excluded from decision-making and reduced to data collectors, undermining trust over time.

STILL TO COME

How it was doneWhat they foundWhat it means for SLPs

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What it does not show

The study was conducted at the end of the partnership, relying on retrospective accounts, which may introduce recall bias. No autistic individuals or parents were involved in the design or as participants, limiting the perspective on how these partnership dynamics affected service users. The sample size was small (30 participants) and specific to one long-standing partnership, so findings may not generalise to other contexts or shorter-term collaborations. The analysis was not designed to test specific conceptual models of partnership sustainability, so it may have missed structured factors that would have emerged from a more targeted inquiry.

Declared interests

The research was supported by La Trobe University and an Australian Research Council Future Fellowship. Several authors (C.B., K.H., K.C., S.U.) had prior roles or salary associations with the service provider or the partnership being studied, which could introduce bias in interpreting the partnership's success or failure. E.P. and T.I. declared no conflicts.

The easy way to misread this

Do not interpret the reported positive impacts on children (e.g. 'children are very happy', 'learning generalised') as evidence of the intervention's efficacy. These are stakeholder perceptions reported within a qualitative study of partnership dynamics, not measured clinical outcomes.

Summarised by AI from the full paper, without a clinician reviewing it. Check it against the source before it changes what you do. Read it on PubMed →