OTSLPCohortAutism : the international journal of research and practice2020

Work, living, and the pursuit of happiness: Vocational and psychosocial outcomes for young adults with autism.

Catherine Lord, James B McCauley, Lauren A Pepa and 2 others

PMID 32431163

WHAT IT FOUND

Young adults with autism and lower verbal IQ had worse work, living, friendships, and daily living skills than higher-IQ autistic and never-ASD adults.

Higher-IQ autistic adults were similar to never-ASD adults, except poorer daily living skills and quality of life.

Key findings

01The ever-ASD lower-IQ group differed from the other two groups on work, residence, friendships, and daily living skills.

02After accounting for adult verbal IQ, the higher-IQ ever-ASD group scored worse on daily living skills than the never-ASD group and scored lower on quality of life than both the lower-IQ ever-ASD and never-ASD groups.

03Across groups, 60% of ever-ASD young adults and 80% of never-ASD young adults had always lived with their parents; 20% of the lower-IQ ever-ASD group and 10-15% of the other two groups had no planned daytime activities; 30-40% of the higher-IQ ever-ASD and never-ASD groups had a friend, and none of the lower-IQ ever-ASD group did.

STILL TO COME

How it was doneWhat they foundWhat it means for OTsWhat it means for SLPs

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What it does not show

Only 123 of 244 eligible young adults had outcome data. Attrition was associated with lower parent education and non-white race, which can reduce generalisability. The never-ASD group had only 17 participants, and self-report comparisons in that group were too small to analyse. Some well-being measures were completed by parents even though they are usually self-report, and parent report may miss the adult's own feelings. Participants were referred for assessment 24 years ago and do not represent today's referral patterns. Few children in the sample received the amount of early intervention available to some families now. The never-ASD group was diagnostically heterogeneous, including intellectual disability, ADHD, language disorder, and major depression. The autism severity score used cannot be assumed equivalent across different ADOS modules. The sample had few females, so confidence in generalising to women is limited.

Declared interests

The supplied text records NIH and non-U.S. government research support. No author conflict-of-interest declaration appears in the provided article text.

The easy way to misread this

Do not read this as showing that autism alone causes worse work, living, or friendship outcomes. The lower-IQ autistic group had the clearest differences, and after accounting for adult verbal IQ several group differences were no longer apparent.

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