SLPOtherDisability and rehabilitation2025

Who am I now? A scoping review on identity changes in post-stroke aphasia.

Rianne Brinkman, Karin Neijenhuis, Mieke Cardol and 1 others

PMID 40008948

WHAT IT FOUND

Identity in post-stroke aphasia was described as changing through stories, roles, stigma and social interaction in 20 reports.

Speech-language pathologists can support story sharing and ask about identity.

Key findings

01The review included 20 reports: 3 book chapters, 5 theoretical papers and 12 empirical papers.

02Definitions of identity were inconsistent, with terms including self, narrative identity, social identity and occupational identity.

03Across reports, identity was described as a social construct shaped by storytelling and societal perceptions of disability.

STILL TO COME

How it was doneWhat they foundWhat it means for SLPs

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What it does not show

This is a scoping review, not a test of treatment effects, and the authors did not assess the quality of the included reports. The evidence base was small and mixed: 20 reports, including 5 theoretical papers and 3 book chapters, with 12 empirical papers of varied designs. Personal narratives written by people with aphasia were excluded, so the findings are filtered through researchers' interpretations. Most participants were in chronic aphasia, from Western countries, and 31 women and 64 men were included; little is known about older adults, nursing home residents, early onset, non-Western backgrounds or socioeconomic status. Many participants had access to therapy or aphasia groups, so people without therapy may be missing. Data collection relied mainly on verbal methods, which may miss nonverbal identity changes in people with communication impairment.

Declared interests

This work was supported by the Dutch Research Council (NWO) grant 023.079.074.

The easy way to misread this

Do not conclude that identity-focused narrative therapy improves mood, quality of life or identity. This scoping review mapped concepts and reports from studies without assessing study quality or testing treatment effects.

Read it on PubMed →