Where are we in family-centered intervention? Parental experiences of DHH children.
Murat Doğan, Mahire Kılıç, Ramazan Bekar
PMID 41474137WHAT IT FOUND
Survey data suggested parents received most family-centered early intervention services, but interviews revealed they often lacked adequate information, active participation, and psychosocial support.
Parents frequently waited outside sessions rather than practicing skills, leaving them to rely on internet sources and other parents to fill gaps in guidance.
Key findings
01Quantitative surveys indicated high rates of service provision, but qualitative interviews revealed significant discrepancies, with most parents reporting insufficient information and guidance despite survey 'yes' responses.
02Parents were often excluded from active participation in intervention sessions, frequently waiting outside the classroom, which hindered their ability to learn and apply language-support strategies at home.
03Systematic assessment of parents' skills and progress was largely absent, with evaluation limited to brief teacher feedback after sessions rather than structured monitoring of parental development.
STILL TO COME
How it was doneWhat they foundWhat it means for SLPs
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What it does not show
The qualitative phase included only 10 participants, limiting the depth and nuance of the interview findings. Survey respondents were 96% parents of children attending SERCs, which may bias results toward these specific institutions. The study did not specify the time elapsed since some participants completed the FCEE process, risking memory bias. The sample was highly heterogeneous in terms of child age, disability status, and communication mode, and the analysis did not deeply explore how these factors influenced experiences. 80% of participants were mothers, potentially underrepresenting fathers' perspectives. The survey measured the presence of services, not their quality, which explains the discrepancy with interview data.
Declared interests
Funded by the Anadolu University Scientific Research Projects Commission. No other conflicts of interest were reported.
The easy way to misread this
Do not interpret the high survey percentages as evidence of high-quality care. The study shows a clear gap between services being nominally provided and parents feeling adequately supported. The survey items asked if services happened, not if they were effective or helpful.
Summarised by AI from the full paper, without a clinician reviewing it. Check it against the source before it changes what you do. Read it on PubMed →