SLPQualitativeAutism : the international journal of research and practice2025

Understanding the experiences of receiving and providing maternity care for autistic adults: A Multi-perspectival Interpretative Phenomenological Analysis study.

Laura Moore, Sarah Foley, Fionnuala Larkin

PMID 39239912

WHAT IT FOUND

Autistic mothers described maternity care as overwhelming, especially bright wards, noise and physical examinations.

They valued continuity, clear explanations and a quieter, darker space, but midwives felt system pressures made this hard.

Key findings

01Mothers found bright lights, noise, shared wards and examinations distressing, and midwives recognised that a busy ward could overwhelm a mother or lead to shutdown.

02Both mothers and midwives valued continuity and supportive relationships, while mothers often shut down, masked or needed more detail when they communicated needs.

03Both groups saw midwifery-led care as more flexible and person-centred, but midwives felt workload and system demands limited adaptations.

STILL TO COME

How it was doneWhat they foundWhat it means for SLPs

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What it does not show

Only four autistic mothers and four midwives were interviewed, so the themes cannot be treated as general findings. All professionals were midwives, not obstetricians or other maternity staff, so other maternity workers' views are not represented. Two midwives were autistic and two had close autistic relatives, which may make their accounts different from typical midwifery practice. Many accounts were retrospective, some decades old, so they may not match current maternity care. Only one mother knew her diagnosis at the time of pregnancy and labour, so accounts may be shaped by later understanding. All mothers communicated verbally and did not have intellectual disability, so the study does not cover that part of the autism spectrum. Seven of eight participants were based in the United Kingdom, and all were white European women, so cultural and service-system differences are missing.

Declared interests

The authors declared no potential conflicts of interest. The study was funded by the Health Service Executive, Ireland, through the Doctoral Training in Clinical Psychology.

The easy way to misread this

Do not read these themes as evidence that changing the environment or care model improves outcomes. This was a qualitative interview study with a small sample, and it did not test any intervention.

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