SLPQualitativeFrontiers in rehabilitation sciences2023

Understanding identity construction among deaf adolescents and young adults: implications for the delivery of person and family-centered care in audiological rehabilitation.

Vera-Genevey Hlayisi, Lieketseng Victoria Sekoto

PMID 38028156

WHAT IT FOUND

Five deaf adolescents described identity as separate from disability, rooted in faith, culture, and school belonging.

They faced stigma and fatigue from explaining themselves. Clinicians should ask about these psychosocial factors, not just hearing loss.

Key findings

01Participants distanced themselves from disability, viewing deafness as a unique trait rather than a limitation, and integrated identity through faith and culture.

02Special schools for the deaf served as safe spaces that fostered a sense of sameness and belonging, allowing participants to solidify their identities.

03Identity construction was stressful due to stigmatization and communication barriers, leading to withdrawal coping strategies and fatigue from repeatedly explaining their deafness.

STILL TO COME

How it was doneWhat they foundWhat it means for SLPs

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What it does not show

The sample size was very small (n=5), limiting the transferability of findings. All participants attended special schools for the deaf, which may skew perspectives on belonging and exclude the experiences of those in mainstream settings. The study excluded individuals with additional impairments, so findings do not apply to those with complex needs. Data was collected in a specific South African context, where socioeconomic factors and local Deaf culture influence identity. Generalizability was not intended, and findings should be applied cautiously to other populations.

Declared interests

The authors received financial support from the University of Cape Town Faculty of Health Sciences Research Committee Awards. No other conflicts of interest were declared.

The easy way to misread this

Do not interpret these five narratives as a universal model of deaf adolescent identity. The participants all attended special schools in South Africa, a context that likely fostered a stronger sense of belonging and positive self-concept than might be found in mainstream or different cultural settings. Clinicians should not assume that distancing from disability is the healthy norm for all deaf adolescents, as identity construction is highly individual and context-dependent.

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