SLPQualitativeAutism : the international journal of research and practice2024

The world is nuanced but pixelated: Autistic individuals' perspective on HIPPEA.

Greta Krasimirova Todorova, Rosalind Elizabeth Mcbean Hatton, Sarveen Sadique and 1 others

PMID 37294012

WHAT IT FOUND

Autistic adults described a predictive coding theory as partially fitting their experience but too deficit-focused.

They reported difficulty generalising new situations, requiring conscious effort. Strong emotions shaped expectations, and masking was used to cope with social demands, despite personal cost.

Key findings

01Participants reported that generalising from past experiences to new situations was difficult and required conscious recall, rather than happening automatically.

02Strong emotional experiences led to lasting expectations about future events, causing anxiety about recurrence or disappointment if positive outcomes did not repeat.

03Participants frequently used masking to avoid negative social consequences, despite acknowledging it was detrimental to their well-being.

STILL TO COME

How it was doneWhat they foundWhat it means for SLPs

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What it does not show

The sample was small (21 participants) and likely skewed towards those with strong cognitive skills capable of introspection. The lay description of the HIPPEA theory was not checked by the theory's originators, so participants were reacting to the researchers' interpretation. Only one parent participated, so the study does not represent parental perspectives. Data collection was online, preventing clarification of misunderstandings during the questionnaire phase.

Declared interests

The authors declared no potential conflicts of interest. The work was partly funded by a studentship from the Scottish Graduate School of Social Science of the Economic and Social Research Council.

The easy way to misread this

Do not interpret this as evidence that the HIPPEA theory is correct or that it should guide clinical assessment. This is a qualitative exploration of how a few autistic individuals felt about a theoretical concept. Their mixed and critical feedback does not validate the theory's mechanisms as factual explanations for autism.

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