In 9 South African families with children with CP, caregivers reported that store-bought foods often didn't match their child's swallowing needs, and the disability grant fell short. Feeding plans should start from what the family can actually buy and prepare.
Seven of nine caregivers (77.8%) said the foods available in local shops were often not appropriate for their child's feeding needs because of texture or preparation requirements, and all nine caregivers (100%) reported they had to modify food textures to make meals safe.
Seven of nine caregivers (77.8%) reported that the disability grant was not enough to cover the household's food needs once the child's specific feeding requirements were taken into account, and seven of nine households (77.8%) experienced food access constraints including anxiety about whether there would be enough food.
The five children classified at EDACS levels III–V (55.6% of the sample) had greater difficulty eating the foods that were available to meet their nutritional needs, and two caregivers described mealtimes lasting between 30 and 90 minutes.
Single-blind randomized controlled trial. Sixty-four participants were randomized across two intervention arms and assessed at twelve weeks for the primary outcome…
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