SLPQualitativeJournal of autism and developmental disorders2021

Supporting Newly Identified or Diagnosed Autistic Adults: An Initial Evaluation of an Autistic-Led Programme.

Laura Crane, Caroline Hearst, Maria Ashworth and 2 others

PMID 32266684

WHAT IT FOUND

Newly diagnosed or self-identified autistic adults described an autistic-led peer group as a safe, less judged space.

They valued hearing peers' experiences, understanding autism positively, and discussing practical ways to handle anxiety, disclosure, and daily life.

Key findings

01Participants said they joined to understand autism, gain empowerment, and develop practical strategies and coping mechanisms.

02Participants valued the autistic-led format, felt a sense of belonging in a diverse group, and reported a positive, practical outlook on autism.

03Participants reported that sharing personal experiences helped them feel understood and notice their own needs.

STILL TO COME

How it was doneWhat they foundWhat it means for SLPs

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What it does not show

This was a small, initial qualitative evaluation of 16 adults, so it reports experiences rather than tested effects. It was an experience-based evaluation, not a trial of effectiveness. All participants were able to take part in a social peer group, and the groups were relatively similar in that respect, so findings may not apply to autistic adults with intellectual disability or those unable to attend group settings. Only 11 participants took part in the 6-month follow-up interviews. Fewer participants from the second iteration took part in follow-up interviews. The programme was not manualised, and it was difficult to determine whether the facilitator's skills or the programme content and structure were responsible. The facilitator helped devise and promote the evaluation, so participants may have been positively biased, although an independent researcher conducted interviews and participants also gave criticism.

The easy way to misread this

Do not read this as proof that the programme works or that autistic-led groups are better than professional support. It reports interview experiences from a small evaluation, not a trial of effectiveness, and participants may have been positively biased because the facilitator helped promote the programme.

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