Studying the Experiences of Children With Moderate to Profound Intellectual Disabilities in Research: A Systematic Review.

Only peer-reviewed articles in English or Finnish since 2000 were searched, and future reviews should include non-peer-reviewed studies in all languages. Title and abstract screening was done by one researcher only, so relevant articles may have been missed. The labels moderate, severe and profound intellectual disabilities were indicative only, because studies reported and classified participants differently. Many studies reported adaptations only generally, so the adaptations may be hard to reproduce. Methodological quality varied across the included studies. The review did not analyse proxy reports or behaviour observation, so it says nothing about how those methods work.

Do not read this review as evidence that any intervention helps children with intellectual disabilities. It reports how researchers collected children's experiences, not patient outcomes or treatment effects.