OTSurveyAutism : the international journal of research and practice2022

Sociocultural context and autistics' quality of life: A comparison between Québec and France.

Vicky Caron, Nuria Jeanneret, Mathieu Giroux and 5 others

PMID 34325546

WHAT IT FOUND

Autistic adults in Quebec reported better autism-specific quality of life than those in France.

In both groups, experiencing autism-related abuse was linked to lower quality of life, along with anxiety, mood problems, chronic pain, and not working.

Key findings

01Autistic adults in Quebec had higher autism-specific quality of life scores than autistic adults in France.

02Experiencing abuse because of autism was associated with lower quality of life scores in both groups.

03Employment and being male were linked to better quality of life, while anxiety, mood disorders, chronic pain, perceived violence and lower education were linked to worse quality of life.

STILL TO COME

How it was doneWhat they foundWhat it means for OTs

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What it does not show

The sample was recruited through social media and personal networks, not a random population sample, so it may not represent autistic adults more broadly. Many people opened the survey but did not finish; 62% of incomplete questionnaires were abandoned before the end of the first part. The study was cross-sectional, so it cannot show that any factor caused higher or lower quality of life. The ASQoL measures autism-specific quality of life, not overall quality of life. The AQ10 had poor internal consistency in this sample (Cronbach’s alpha = 0.60). Some associations could not be tested because too few respondents had certain conditions. The models explained only part of the variance, so other unmeasured factors likely matter. The difference between Quebec and France may be partly amplified by differences between the groups. Perceived violence was measured as the person's perception, not as an objective assessment of experienced stigmatization.

Declared interests

The authors declared no potential conflicts of interest. Funding came from the Research Centre of CIUSSS Nord-de-l’Île-de-Montréal and Fonds de recherche du Québec - Santé. Three autistic expert collaborators were paid for their time and were involved in survey design, recruitment, coding and analysis.

The easy way to misread this

Do not read the higher Quebec scores as proof that Quebec causes better quality of life. This was a cross-sectional self-report survey, so it shows associations at one time, not cause and effect.

Read it on PubMed →