Self-Reported Burden Among Informal Caregivers of Patients Receiving Psychiatric Hospital Treatment: A National Cross-Sectional Study.
Malene Thygesen, Berit Kjærside Nielsen, Trine Ellegaard and 4 others
PMID 41220246WHAT IT FOUND
52.3% of outpatient and 66.8% of inpatient caregivers reported high burden, especially parents.
Free-text comments described emotional strain, strained relationships, 24/7 demands and poor care coordination. Ask family caregivers about burden and discharge support, but this survey cannot prove what reduces it.
Key findings
0152.3% of caregivers of outpatients and 66.8% of caregivers of inpatients reported a high degree of burden.
02After adjustment, parental caregivers had higher odds of high burden than partners (adjusted OR 1.80 for outpatients, 3.81 for inpatients), and caregivers of outpatients with eating disorders had higher odds than caregivers of patients with schizophrenia (adjusted OR 3.91).
03Free-text comments identified four burden areas: emotional, relational, everyday-life and health-system burden; caregivers reported lack of involvement in treatment and poor coordination between psychiatry, municipal authorities and general practitioners.
STILL TO COME
How it was doneWhat they foundWhat it means for RNs
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What it does not show
The study was cross-sectional, so it can show associations but cannot prove that a caregiver characteristic, patient diagnosis or contact duration caused higher burden. Only 37% of invited caregivers responded, and caregivers were designated by patients, so caregivers who were not chosen or did not respond may differ. Patients unable to participate because of severe psychosis, dementia, moderate to severe mental disability, terminal illness or acute transfer to a somatic hospital were excluded, so the sample may not represent all psychiatric patients. Data were collected at fixed times and did not account for changes in the patient's condition over time. Some analyses had missing data, and the authors note possible response errors, misclassification and unmeasured confounding such as the caregiver's own mental health or socioeconomic status. The inpatient subgroup was much smaller than the outpatient subgroup, and most inpatient associations were not statistically significant. Qualitative comments were anonymised by using composite quotes, so the exact wording of individual caregivers is not preserved.
Declared interests
The authors declared no conflicts of interest. The study was funded by the Research foundation of Central Denmark Region.
The easy way to misread this
Do not read the higher odds among parents or caregivers of eating-disorder patients as proof that targeting those groups will reduce burden. This was an observational survey; no intervention was tested, and the study cannot establish cause.