RNSurveyJournal of pediatric health care : official publication of National Association of Pediatric Nurse Associates & Practitioners2020

Self-Management, Self-Efficacy, and Health-Related Quality of Life in Children With Chronic Illness and Medical Complexity.

Lilian Bravo, Mary K Killela, Beck L Reyes and 4 others

PMID 32107073

WHAT IT FOUND

Higher self-management and self-efficacy were associated with better health-related quality of life in children with chronic illness and medical complexity.

Emotional and mental scores were lower than physical and social scores.

Key findings

01Children's emotional and mental health-related quality of life scores were lower than their physical and social scores.

02Higher self-management and self-efficacy were associated with higher total health-related quality of life scores.

03Children with high self-management levels had higher self-efficacy scores than those with medium or low levels.

STILL TO COME

How it was doneWhat they foundWhat it means for RNs

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What it does not show

The sample was small, with 11 children, 21 adolescents, and 32 parents or guardians, and it came from one medical center. The study was cross-sectional, so it showed associations during a hospital stay, not that self-management or self-efficacy caused better quality of life. Patients younger than 8 years and patients with cognitive or neurologic impairment that prevented completion were excluded. Only English-speaking participants were included. Data were collected 24 to 48 hours before discharge, so results may not apply to children living at home. The study did not test a self-management or self-efficacy intervention.

Declared interests

The article is listed as supported by NIH extramural research. No author conflicts of interest are stated.

The easy way to misread this

Do not conclude that improving self-management or self-efficacy will improve quality of life. This was a small survey of associations during hospitalization, not a trial of an intervention.

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The study

Participants
children (n=11), adolescents (n=21), and parents or guardians (n=32)
Certainty of evidence
Low

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Lilian Bravo, Mary K Killela, Beck L Reyes, et al. Self-Management, Self-Efficacy, and Health-Related Quality of Life in Children With Chronic Illness and Medical Complexity. Journal of pediatric health care : official publication of National Association of Pediatric Nurse Associates & Practitioners. 2020.

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