OTQualitativeJournal of applied research in intellectual disabilities : JARID2026

Residential Transitions in Supported Living: Experiences of Adults With Intellectual Disabilities and Parents.

Kim Ulvin, Laila Tingvold, Karina Aase and 1 others

PMID 41947548

WHAT IT FOUND

Adults with intellectual disabilities and their parents described years of uncertain waiting with little real choice, then a fast move and a long settling-in where staff rules governed daily life.

Parents felt sidelined but still carried the burden.

Key findings

01The search for housing was long, uncertain and frustrating, driven by a shortage of suitable places. Once an offer finally arrived, participants described having no real choice about where they lived or what support came with it.

02After years of waiting, the move itself happened quickly: an intense three-month run-up, then a prolonged and often turbulent settling-in period.

03After the move, adults with intellectual disabilities described staff introducing rules unilaterally, monitoring where they went and who they saw, and leaving them little privacy in their own home.

STILL TO COME

How it was doneWhat they foundWhat it means for OTs

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What it does not show

The study is small: five adults with intellectual disabilities and eight parents were interviewed, plus four adults in a focus group. There is no way to know how far these accounts reflect other people's experience. Everyone lived in, or had family living in, the same kind of municipality-run housing with staff on site around the clock, in one semi-rural Norwegian municipality. Different housing models and different parts of the country may produce different accounts. The sample was mostly women, there was only one parent and adult child who both took part, and only about half the participants had an ongoing process or had moved in the last five years, so memories of past moves may have faded or shifted. About half the data came from people with varying communication and language skills, which required simpler questions and some filling in of context by the researchers, and the authors note that social desirability may have shaped what people said. The researchers tried and failed to recruit parents into separate focus groups, so parents' views come only from individual interviews. The first author had worked for over a decade in co-located supported housing, a background the authors say may have influenced the analysis.

Declared interests

The authors report no funding and declare no conflicts of interest.

The easy way to misread this

Do not read this as evidence that co-located supported housing causes the problems described, or that some other arrangement would work better. It is a qualitative account of what a small group of people in one Norwegian municipality described. No outcomes were measured and no types of housing were compared.

Summarised by AI from the full paper, without a clinician reviewing it. Check it against the source before it changes what you do. Read it on PubMed →


The study

Participants
Five adults with intellectual disabilities and eight parents took part in 12 individual interviews, and four adults with intellectual disabilities took part in a focus group interview
Certainty of evidence
Very low

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Kim Ulvin, Laila Tingvold, Karina Aase, et al. Residential Transitions in Supported Living: Experiences of Adults With Intellectual Disabilities and Parents. Journal of applied research in intellectual disabilities : JARID. 2026.

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