PTRNQualitativeJournal of advanced nursing2025

Reasons for (Not) Seeking Care for Fatigue and Care Needs Among Patients With Inflammatory Bowel Disease: A Qualitative Interview Study.

Quirine M Bredero, Milou M Ter Avest, Gerard Dijkstra and 2 others

PMID 39996394

WHAT IT FOUND

Some fatigued IBD patients did not seek fatigue care because they saw it as inevitable, distrusted available help, or felt healthcare professionals dismissed it.

They wanted proactive, person-centred conversations and tailored support.

Key findings

01Some patients did not seek fatigue care because they believed nothing could be done about it or that fatigue was part of IBD.

02Patients said care-seeking was encouraged when clinicians discussed fatigue and discouraged when clinicians dismissed it.

03Patients said they wanted person-centred care and active discussion of fatigue by clinicians.

STILL TO COME

How it was doneWhat they foundWhat it means for PTsWhat it means for RNs

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What it does not show

This qualitative study interviewed 16 patients, so it cannot show whether fatigue care works or how common these views are. Only patients in remission with severe fatigue were included, so it may not apply to patients during flares or with milder fatigue. More female than male patients were interviewed, and the authors said male perspectives may be underrepresented. All patients had at least six years since diagnosis, so newly diagnosed patients may have different needs. The study was done at one academic hospital in the Netherlands, with online interviews during the pandemic, so transferability may be limited. Analysis was not performed alongside data collection, so the interview guide was not adapted to emerging topics such as social support. Patients reported perceptions and needs, not observed care-seeking behaviour or treatment outcomes.

Declared interests

G.D. received a research grant from Royal DSM and an advisory board fee from Pharmacosmos outside this work; the other authors declared no conflicts. Funding came from University Medical Centre Groningen and Horizon Europe MiGut-Health.

The easy way to misread this

Do not read these patient preferences as proof that physiotherapy, psychological support or nurse-led fatigue conversations reduce fatigue. This was a qualitative interview study of 16 patients in remission, so it describes perceptions and care needs, not treatment effects.

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