SLPSurveyAutism : the international journal of research and practice2019

Race influences parent report of concerns about symptoms of autism spectrum disorder.

Meghan Rose Donohue, Amber W Childs, Megan Richards and 1 others

PMID 29100475

WHAT IT FOUND

Black parents of toddlers diagnosed with ASD reported fewer ASD-specific concerns than White parents, especially social and repetitive behavior concerns, even though Black children had more severe social symptoms.

Speech concerns were common in both groups.

Key findings

01Black parents reported fewer ASD-specific concerns than White parents.

02Black parents were less likely than White parents to report social concerns and restricted and repetitive behavior concerns.

03Race did not predict speech/communication concerns, concerns that directly named autism/ASD, non-ASD concerns, or disruptive behavior concerns.

STILL TO COME

How it was doneWhat they foundWhat it means for SLPs

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What it does not show

Only 62.2% of children who screened positive completed the evaluation, and families with less maternal education were less likely to complete it. The sample was highly educated, and the majority of parents had completed college, so it may not apply to families with less formal education. The study measured parent concerns before diagnosis and cannot show that fewer ASD concerns caused delayed or missed diagnosis. Parent and child race were based on self-report or parent identification, and the sample included only White and Black parents. Black children in the sample had lower cognitive and adaptive scores and greater social affect severity than White children, so the race groups differed in ways beyond parent report. Concerns were coded from free-response answers, so the category results depend on how researchers classified parents' words.

Declared interests

Publication types list NIH and U.S. Government research support. Diana Robins is co-owner of M-CHAT LLC, which licenses use of the M-CHAT in electronic products. The study used the free version of the M-CHAT and reported no royalties associated with it.

The easy way to misread this

Do not conclude that Black parents are less concerned about their children or that their children have milder autism. The study found fewer reported ASD-specific concerns, especially social and restricted and repetitive behavior concerns, even though Black children had more severe social affect symptoms.

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