Psychometric Properties of Instruments to Assess Movement Disorders in People With Intellectual Disabilities Using Antipsychotics: A Systematic Literature Review.
Maria Louise Dieudonnée Hoekstra-van Duijn, Maureen Bernardina Gerhardus Wissing, Bibi den Haan and 2 others
PMID 42708707WHAT IT FOUND
No single assessment scale consistently worked well for checking movement disorders in people with intellectual disabilities taking antipsychotics.
Watch for restlessness, involuntary movements, spasms, slowness, rigidity or tremor, and record what you see for treatment review.
Key findings
01No single instrument consistently demonstrated good feasibility, interrater reliability and validity across studies.
02The evidence base was narrow: 10 studies assessed seven instruments, and only feasibility, interrater reliability and validity were examined.
03The MEDS subscales for dystonia and combined parkinsonism/dyskinesia did not significantly detect differences among groups taking atypical, typical or no antipsychotics in one study.
STILL TO COME
How it was doneWhat they foundWhat it means for PTsWhat it means for OTs
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What it does not show
The review included only 10 studies, and four of them had 2 to 7 participants, so the findings are based on a very small evidence base. The included studies were heterogeneous, so the authors could not combine their results in a meta-analysis. Most studies were published more than two decades ago, and all instruments relied on caregiver or clinician observation rather than objective measurement. Responsiveness and internal consistency were not examined in any included study, so the review cannot tell whether these scales detect change over time or whether their items form a consistent measure. The quality of the psychometric examinations varied, with summary scores from 0.27 to 0.91, and study design was sufficiently described in only six of 14 examinations.
Declared interests
The work was supported by the Academic Collaborative Research Center Healthy Ageing and Intellectual Disabilities, which is financially supported by three Dutch residential care facilities and a university medical centre department. The authors say the funder was not involved in conduct or manuscript preparation, and they declare no conflicts of interest.
The easy way to misread this
Do not assume any listed scale is validated for people with intellectual disabilities taking antipsychotics. No single instrument consistently showed good measurement properties, and four studies had only 2 to 7 participants.