Priorities for change for autistic people across Europe.

The sample likely underrepresents autistic people with high support needs and children, as these groups often cannot complete online surveys themselves. Participants who belonged to multiple groups (e.g., an autistic parent) could not have their responses clearly attributed to one role, making it unclear if they were speaking as a parent or as an autistic person. The survey did not collect data on support needs levels or ethnicity, so differences in priorities across these factors could not be analysed. The sample was skewed towards female participants and those from Germany, the UK, France, Spain, and Poland, limiting generalisability to other European countries and genders.

The study was funded by the Innovative Medicines Initiative, Autism Action, Wellcome Trust, Simons Foundation Autism Research Initiative, Templeton World Charity Foundation, and the Medical Research Council. No specific conflicts of interest were declared by the authors in the provided text.

Do not assume that parents' and professionals' priorities match those of the autistic people they support. Autistic participants ranked bullying and financial hardship as urgent, while parents ranked daily living support and early intervention higher, reflecting different experiences and burdens.