Preferences for Participation Measurement Among Individuals Diagnosed With Cancer: A Qualitative Content Analysis.
Allison J L'Hotta, Taniya E Varughese, Kathleen D Lyons and 3 others
PMID 37354019WHAT IT FOUND
Patients preferred short screening tools like PROMIS for busy clinic visits but found them too vague to explain their daily struggles.
Detailed measures like CPI and PM-3D4D were liked for deeper reflection but felt too long for routine care. Community engagement questions were often irrelevant.
Key findings
01Most participants ranked the shorter PROMIS subscales as preferred for clinical settings, but only a minority felt these best explained their participation in meaningful activities.
02Participants found the CPI and PM-3D4D more specific and in-depth than PROMIS, though some felt the follow-up questions were repetitive, too long, or confusing.
03Feedback on the CPI's community engagement and enfranchisement sections was mixed, with several participants stating these concepts did not resonate with their life experiences or were too abstract.
STILL TO COME
How it was doneWhat they foundWhat it means for OTs
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What it does not show
The study excluded individuals who were aphasic or did not speak English, so findings do not apply to those populations. Participants were recruited from a single academic medical center, which may limit generalizability to other settings. The sample size (40) was targeted for saturation in qualitative analysis, not for statistical power in the quantitative ranking data. Racial demographics were representative of the specific center but not adequate to understand the experiences of all minoritized groups.
Declared interests
Dr. Allison King disclosed a consulting payment from Global Blood Therapeutics, which is unrelated to this work. The other authors declared no conflicts of interest.
The easy way to misread this
Do not assume that because patients preferred the shorter PROMIS measure for clinical convenience, it is the best tool for understanding their rehabilitation needs. Only 36% felt it explained their participation well, and the study suggests detailed measures are needed for effective treatment planning.