SLPQualitativeJournal of autism and developmental disorders2023

"Peas in a pod": Oral History Reflections on Autistic Identity in Family and Community by Late-Diagnosed Adults.

Rozanna Lilley, Wenn Lawson, Gabrielle Hall and 7 others

PMID 35834048

WHAT IT FOUND

Late-diagnosed autistic adults described building shared identity through 'peas in a pod' recognition in family and finding 'tribes' in online and face-to-face autistic communities.

These connections validated their experiences, though some faced rejection from partners or health professionals.

Key findings

01Participants often identified autistic traits in family members, viewing similarity as a positive connection rather than a deficit.

02Interaction with other autistic people in online and face-to-face settings provided validation and a sense of belonging.

03Some participants experienced rejection of their diagnosis by partners or health professionals, leading to hesitation in disclosure.

STILL TO COME

How it was doneWhat they foundWhat it means for SLPs

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What it does not show

The sample was small (26 people) and self-selected, consisting of adults who were verbally fluent, intellectually able, and generally supportive of the neurodiversity paradigm. The findings reflect the experiences of late-diagnosed adults in Australia and may not apply to those who are less verbal, have different cultural backgrounds, or hold different views on autism. Qualitative methods do not produce generalisable results or evidence of treatment efficacy.

Declared interests

The study was funded by the Cooperative Research Centre for Living with Autism and Macquarie University. The research team included autistic researchers who were actively involved in all stages of the study.

The easy way to misread this

Do not interpret these themes as evidence that specific interventions improve outcomes. This study reports the subjective experiences of a small, highly educated, and verbally fluent group of adults who largely embraced the neurodiversity framework. These perspectives do not represent all autistic people, particularly those with intellectual disabilities or who do not identify with the autistic community.

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