Patient-Reported Dysphagia in Adults with Eosinophilic Esophagitis: Translation and Validation of the Swedish Eosinophilic Esophagitis Activity Index.
Sofie Albinsson, Lisa Tuomi, Christine Wennerås and 1 others
PMID 33686463WHAT IT FOUND
The Swedish EEsAI reliably measures symptom severity in adults with eosinophilic esophagitis.
It clearly separated patients from healthy controls, with patients scoring much higher. The electronic version is recommended over paper to avoid confusion about which questions to answer.
Key findings
01The Swedish EEsAI scores were significantly higher in patients with eosinophilic esophagitis compared to nondysphagia controls, demonstrating the instrument's ability to distinguish between the two groups.
02Internal consistency for the main domains was satisfactory, and test-retest reliability was excellent for the overall score and the visual dysphagia domain.
03The electronic version of the instrument is more user-friendly than the paper version because it automatically adjusts questions based on previous answers, preventing missing data and layout confusion.
STILL TO COME
How it was doneWhat they foundWhat it means for SLPs
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What it does not show
The control group was recruited from the authors' colleagues and acquaintances, which may not represent the general population. Many items showed floor effects, meaning the instrument may not be sensitive enough to detect mild difficulties in patients who are currently well-managed or asymptomatic. The paper version of the instrument had layout ambiguities that led to interpretation errors and missing data. The study did not compare the S-EEsAI to an objective measure of disease activity, such as endoscopy or histology, at the time of assessment.
Declared interests
Funded by the Healthcare Board of Region Västra Götaland, The healthcare board Fyrbodal, Göteborgs Universitet, Bröderna Erikssons fond, and the University of Gothenburg. No commercial conflicts of interest are reported in the provided text.
The easy way to misread this
Do not assume the Swedish EEsAI is interchangeable with the EORTC QLQ-OES18. While they correlate moderately, they measure different constructs, and the EEsAI is specifically designed to capture the adaptive eating behaviors unique to eosinophilic esophagitis.