Patient preferences and experiences of participation in surgical cancer care.
Jenny Drott, Victoria Fomichov, Maria Nordén and 4 others
PMID 35607906WHAT IT FOUND
Patients after upper abdominal cancer surgery said being listened to and two-way communication mattered most, and those were best matched.
Symptom management, personal goals, self-care and planning were often less experienced than preferred.
Key findings
01The most crucial participation attributes were reciprocal communication and being listened to by healthcare staff, and patients reported the highest experiences of these.
02High proportions matched for reciprocal communication and being listened to, with 94% and 91% respectively experiencing fair or sufficient conditions.
03The lowest sufficient preference-based participation was for experiences being recognized and phrasing personal goals, at 32% and 33%.
STILL TO COME
How it was doneWhat they foundWhat it means for RNs
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What it does not show
Only 101 of 132 consented patients returned completed questionnaires, and the study did not compare responders with nonresponders. Patients reported experiences after discharge, so recall of participation may be biased. The sample was from one Swedish university hospital and included more pancreatic and liver tumours than bile duct or stomach tumours. Patients with cognitive impairment or without mastery of Swedish were excluded. The 4Ps is a relatively new self-report tool, and the study describes preferences and experiences rather than testing whether care changes outcomes.
Declared interests
The authors declared no conflicts of interest. Funding came from Forskningsrådet i Sydöstra Sverige and the Medical Research Council of Southeast Sweden.
The easy way to misread this
Do not conclude that preference-based participation was achieved for all patients. Although 73% matched for being listened to, 27% did not, and the study did not test whether using these findings changes care outcomes.