Parental involvement in the care and intervention of children with hearing loss.
Ennur Erbasi, Nerina Scarinci, Louise Hickson and 1 others
PMID 27599106WHAT IT FOUND
Parents of children with hearing loss described taking the central role through work behind the scenes, case management, language support, advocacy, and everyday parenting.
These themes show what parents do, not that their involvement improves child outcomes.
Key findings
01Parents described taking a central role in intervention, with five linked themes: working behind the scenes, case management, language development, advocacy for all children with hearing loss, and everyday parenting.
02Parents said involvement included reducing background noise, seeking information, arranging and attending appointments, evaluating services, communicating with professionals, advocating, and helping the child self-manage hearing loss.
03Fathers were more often described as everyday parents and breadwinners, while mothers took more responsibility for appointments, communication, hearing device management, and carrying therapy into the home.
STILL TO COME
How it was doneWhat they foundWhat it means for SLPs
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What it does not show
The sample was small and selected to show different experiences, with 17 parents from 10 families, so the themes may not cover all parents of children with hearing loss. Families were selected from a larger cohort and required the child to have a nonverbal cognitive ability score of 85 or higher and educational intervention over the past 3 years, so results may not apply to children with lower cognitive scores or no recent educational intervention. Parents who volunteered appeared to be actively involved, so the study may not describe families with less involvement. Some accounts were retrospective, so parents' current descriptions of past involvement may not match what they would have reported at the time. Children were attending primary school and had received early intervention, so the findings may not apply to older children or families not yet in school. The study reported experiences and themes, not child outcomes, so it cannot show that any parental behaviour improved speech, language, or academic results. The first author was blinded to participant and child outcome data, but the researchers were allied health professionals and acknowledged potential bias.
Declared interests
The supplied publication types list NIH and non-U.S. government research support. No author conflict declaration is included in the supplied text.
The easy way to misread this
Do not treat these themes as proof that parental involvement causes better speech or language outcomes. The study interviewed 17 parents from 10 families and reported their experiences, not child outcome data.