Parent reported barriers and facilitators to support services for autistic children in Aotearoa New Zealand.
Carla Wallace-Watkin, Jeff Sigafoos, Lisa Woods and 1 others
PMID 37129303WHAT IT FOUND
Parents of autistic children in New Zealand identified lengthy waiting lists as the greatest barrier to support services.
They reported that their own ability to advocate for their child was the most helpful facilitator. Lower income families faced significantly more barriers than higher income families.
Key findings
01Lengthy waiting lists were experienced to a significantly greater extent than the majority of other barriers to support services.
02Parent ability to advocate for their child was experienced as significantly most helpful compared to the majority of other facilitators to support services.
03Lower income parents experienced a significantly higher total number of barriers than parents who were higher income.
STILL TO COME
How it was doneWhat they foundWhat it means for SLPs
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What it does not show
The survey was only available in English, so results may not represent families who primarily speak other languages. Participants without reliable internet access had less opportunity to participate, as all responses were received online. The number of participants from Pacific peoples and other cultural groups was much lower than New Zealand population estimates. It was not possible to explore connections between barriers/facilitators and specific services because few participants provided this information. Data were based on self-report, so recall bias is possible.
Declared interests
The authors declared no potential conflicts of interest. Preparation of the article was supported in part by a Victoria University of Wellington PhD scholarship and the Te Herenga Waka Māori Doctoral Scholarship.
The easy way to misread this
Do not assume that the high number of facilitators reported by parents of non-speaking children means those services are more effective or helpful. The study found that while these parents identified more facilitators, there was no significant difference in how helpful those facilitators were rated compared to other groups.