Palliative care management by caregivers in home care: theoretical validation in a conversation circle.
Roberta Teixeira Prado, Denise Rocha Raimundo Leone, Thiago de Medeiros Souza and 3 others
PMID 36102471WHAT IT FOUND
Family caregivers and home care professionals said a model of managing end-of-life care at home matched their daily experience.
Seven of 46 statements were not fully validated, and one was rejected by both groups.
Key findings
01Seven of 46 propositions were not fully validated, and one proposition was not validated because both groups disagreed with it.
02Validators said the theoretical matrix was understandable and represented their daily experience.
03At the end of the conversation circle, validators agreed the matrix had enough abstraction to explain the phenomenon and potential to be applied in different home care service contexts.
STILL TO COME
How it was doneWhat they foundWhat it means for RNs
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What it does not show
The study validated a qualitative theory. It did not test whether any intervention improves patient or caregiver outcomes. The validation happened in a conversation circle in a public home care service in Minas Gerais, Brazil, in December 2018. The sample was 24 validators, and some invited caregivers were absent because of death in the family or no one to care for the family member while they attended. The matrix was not applied to a new context, so the control criterion for transferability was not tested. Seven propositions were not fully validated, including statements about how professionals talk about dying.
The easy way to misread this
Do not read this as evidence that a conversation circle or the theoretical matrix improves patient or caregiver outcomes. It was a qualitative validation with 24 validators and did not test an intervention or apply the matrix in a new home care context.