SLPQualitativeAutism : the international journal of research and practice2024

Non-specialist delivery of the WHO Caregiver Skills Training Programme for children with developmental disabilities: Stakeholder perspectives about acceptability and feasibility in rural Ethiopia.

Tigist Zerihun, Mersha Kinfe, Kamrun Nahar Koly and 5 others

PMID 37194191

WHAT IT FOUND

Caregivers and facilitators found the WHO caregiver skills programme acceptable when delivered by trained local non-specialists.

Caregivers said it helped them understand and support their children, but rural use needs simpler materials, household items instead of toys, and strong supervision.

Key findings

01Caregivers found the programme relevant and acceptable, and they accepted delivery by non-specialist facilitators.

02Facilitators said some content was hard to explain because of low literacy, unavailable toys, and unfamiliar caregiver-child play.

03Facilitators said ongoing supervision was essential for delivering the programme.

STILL TO COME

How it was doneWhat they foundWhat it means for SLPs

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What it does not show

This study reports stakeholder views about acceptability and feasibility, not measured child or caregiver outcomes. The qualitative sample came from a pre-pilot and a pilot trial, so it cannot show how the programme works at scale. Caregivers were interviewed after different stages of the programme, which may have affected their responses. Because no other services were available, participants may have given socially desirable positive responses. The primary author was a CST master trainer and supervisor, which may have biased interpretation. The sample was purposive and from rural districts with low literacy, so views may not apply to other settings. The study did not include views of autistic people or people with developmental disabilities themselves.

Declared interests

The authors declared no potential conflicts of interest. The study was funded by Autism Speaks and by a Joint Global Health Trials grant from the Medical Research Council, Department of Health and Social Care, Foreign, Commonwealth and Development Office, and Wellcome Trust. Some authors also received support from the National Institute for Health Research.

The easy way to misread this

Do not read this as evidence that the programme improves children's communication, behaviour, or caregiver skills. It reports what caregivers and facilitators said about acceptability and feasibility, not measured outcomes.

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