SLPQualitativeJournal of applied research in intellectual disabilities : JARID2019

Managing relational autonomy in interactions: People with intellectual disabilities.

Sandra Dowling, Val Williams, Joe Webb and 2 others

PMID 30980465

WHAT IT FOUND

Support partners sometimes turned choices into lessons, correcting or rejecting what the person with an intellectual disability chose.

Supporting autonomy included stating limits, offering options, allowing deferral, and carrying out the person's own decisions.

Key findings

01Support partners sometimes followed a person's choice with correction or negative feedback, including a knife choice, motorbike, meat selection and workshop colours.

02In a pottery task, the support worker stated the round shape restriction early, offered shape options after hesitation, and deferred the final decision.

03A person's autonomy was visible when the PA carried out the person's own request, such as returning furniture, rather than making them do the task.

STILL TO COME

How it was doneWhat they foundWhat it means for SLPs

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What it does not show

This is a small conversation analysis, not a trial. It included nine people with intellectual disabilities, all with expressive language and most described as having moderate learning disabilities, so it may not apply to people with severe or profound disabilities or little speech. The contexts were everyday activities in England, mainly with personal assistants or craft workshop support. The extracts were chosen by the research team and shaped by role-play meetings, so they are not a random sample. The paper describes interaction patterns, not measured effects on autonomy, wellbeing or safety.

Declared interests

No conflicts of interest were reported. The work was funded by the Economic and Social Research Council.

The easy way to misread this

Do not read the suggested strategies as proven methods that improve autonomy. They are patterns observed in a small conversation analysis, not tested interventions.

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