Loneliness and Its Associated Factors in Individuals With Intellectual Disability and Borderline Intellectual Functioning: A Systematic Review.
Jordi Llorens-Roman, Modesta Pousada, Beni Gómez-Zúñiga
PMID 41920014WHAT IT FOUND
Loneliness is common in adults with intellectual disability: a weighted average of 41.70% across 40 studies, above general-population figures.
Being single, in poor health, on low income, unemployed, living alone or in an institution, and having few friendships were the factors most consistently linked.
Key findings
01Across the 40 included studies, a sample-size-weighted average of 41.70% of adults with intellectual disability reported feeling lonely, with individual study estimates ranging from 13.41% to 50.20%.
02The factors most consistently linked to loneliness were being single, having health problems, a low income, being unemployed, living alone or in an institutional setting, scarce family contact or family control dynamics, limited friendships or infrequent social contact, restricted participation in social activities, and living in unsafe or non-inclusive environments.
03Eight of the included studies tested an intervention, mostly programmes aimed at building social contact through volunteers, mentors or activity groups. Results were mixed and most came from small samples.
STILL TO COME
How it was doneWhat they foundWhat it means for OTs
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What it does not show
Only four databases were searched and only English or Spanish papers were included, so relevant studies may have been missed. The prevalence figures are simple averages across very different studies, not tested estimates of how common loneliness is in the population. The 40 studies defined and measured loneliness differently, and some asked a single question. People may under-report loneliness when asked directly, so the true figure could be higher. Almost all included studies were observational. They show what goes with loneliness, not what causes it, and the authors' own account of how the factors connect is described as tentative and conceptual. Most participants had mild or moderate intellectual disability, so this says little about people with the highest support needs. Evidence on people with borderline intellectual functioning is very thin: one prevalence study, three studies in total, and some data pooled with people who have intellectual disability. Samples were mostly white; only six studies reported participants' ethnicity, ranging from 50% to 91.4% white. The intervention evidence rests on small studies and a single pilot randomised trial.
Declared interests
The work was funded by the industrial doctorates plan of the Generalitat de Catalunya, carried out in collaboration with Fundació per a persones amb Discapacitat de Menorca, a disability foundation. The authors declare no conflicts of interest.
The easy way to misread this
Do not read this as support for social-skills training or befriending programmes. The one social-skills trial included found no significant change in loneliness and the befriending trial found no significant improvement either, while the review's most consistent associations were with income, employment, housing, health and safety rather than with individual skill.
Summarised by AI from the full paper, without a clinician reviewing it. Check it against the source before it changes what you do. Read it on PubMed →