PTRNQualitativeNursing open2018

Living with chronic pain: Patients' experiences with healthcare services in Norway.

Kine Gjesdal, Elin Dysvik, Bodil Furnes

PMID 30338097

WHAT IT FOUND

Chronic pain patients felt helped when clinicians believed them, coordinated care and pain rehabilitation was useful for everyday life.

They also felt dismissed, rushed, worse after untailored rehabilitation, and hopeless when told to accept pain.

Key findings

01Patients felt acknowledged when they received practical support and pain rehabilitation that addressed everyday life.

02Patients felt neglected when they were not believed and when rehabilitation was not tailored to them.

03Patients interpreted advice to accept pain as hopelessness when it sounded like no progress was possible.

STILL TO COME

How it was doneWhat they foundWhat it means for PTsWhat it means for RNs

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What it does not show

This is a qualitative interview study, so it reports patient experiences rather than measured clinical outcomes or treatment effects. Participants were recruited through a patient organization, so they may represent people willing and able to join such associations. The sample had 16 women and only two men, so the findings may not reflect men's experiences. The paper did not compare experiences by healthcare profession, so it cannot say which provider caused the positive or negative encounters. The study did not reveal differences in experience by age group.

The easy way to misread this

Do not read the positive experiences as proof that pain rehabilitation works. The study reports what 18 patients said about care, not measured outcomes.

Read it on PubMed →