SLPSurveyJournal of autism and developmental disorders2024

Language Preferences in the Dutch Autism Community: A Social Psychological Approach.

Renate Bosman, Jochem Thijs

PMID 36757544

WHAT IT FOUND

Dutch autistic adults overall preferred person-first language, but identity-first language was not rejected and preferences varied widely.

Ask each client which wording they prefer rather than assuming one term fits all.

Key findings

01Among the 215 Dutch autistic adults surveyed, person-first language was preferred over identity-first language overall.

02Person-first and identity-first language were not mutually exclusive preferences: there was considerable variation, identity-first language was not rejected on average, and the two evaluations were negatively but not very strongly related.

03Higher community identification and later relative age of diagnosis were indirectly linked to more positive evaluation of identity-first language and less positive evaluation of person-first language through perceived consequences.

STILL TO COME

How it was doneWhat they foundWhat it means for SLPs

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What it does not show

Cross-sectional survey data cannot show cause and effect; language preferences may have influenced community identification, or vice versa. The sample was convenience and snowball recruited, so it is not fully representative of the Dutch autism community. It included more women than men, and it is unclear whether non-verbal autistic adults were reached. Of 313 people who opened the survey, 215 completed it, and 42 stopped after the identification items, so people willing to report community identification may be overrepresented. The study was done in the Netherlands in Dutch, so language preferences may not generalise to other countries or languages, and the authors note possible negative connotations of identity-first language in Dutch. The researchers measured language preferences using survey items that themselves used terms such as autism community and having autism, which could have influenced responses. Perceived prejudice was measured with one item developed for the study, with unknown psychometric qualities, and it was asked before the main questions, so it may have primed participants.

The easy way to misread this

Do not conclude that person-first language should be used for all autistic clients, or that identity-first language should be assumed for autistic clients. In this Dutch sample, person-first language was overall preferred, but there was considerable individual variation, identity-first language was not rejected on average, and the sample was a convenience survey rather than a clinical trial.

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