'It's been adapted rather than impacted': A qualitative evaluation of the impact of Covid-19 restrictions on the positive behavioural support of people with an intellectual disability and/or autism.
Karen McKenzie, George C Murray, Rachel Martin
PMID 33484052WHAT IT FOUND
Staff supporting people with intellectual disability or autism described adapting positive behavioural support during UK lockdown rather than abandoning it.
Community activities moved indoors, family contact went online, and many staff reported fewer behaviours that challenge when routines were simplified.
Key findings
01Staff tried to maintain meaningful activities and family contact by moving community activities into homes and using video or phone calls.
02Most participants said behaviour support plans remained in place, and many reported fewer behaviours that challenge rather than more.
03Staff used positive behavioural support ideas at organisational level to support stressed colleagues, including welfare calls and wider access to positive behavioural support expertise.
STILL TO COME
How it was doneWhat they foundWhat it means for OTs
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What it does not show
The interviews were with 19 staff from one region, all of whom had completed a positive behavioural support programme, so the views may not represent other areas or untrained services. The study recorded staff perceptions, not measured changes in quality of life or behaviours that challenge, so it cannot show what actually happened to the people supported. The researchers had worked on the wider positive behavioural support evaluation and had prior contact with participants, which may have shaped answers or interpretation. Participants held different roles and qualifications, from support workers to organisational leads, so their views may reflect their position rather than the same experience. Interviews took place between 3rd April and 28th May 2020, so later lockdown experiences may differ. No themes specific to autism were identified, so relevance to autistic people without intellectual disability is uncertain.
Declared interests
The authors declared no conflicts of interest.
The easy way to misread this
Do not read staff reports of fewer behaviours that challenge as proof that positive behavioural support caused the change. The study asked staff for their perceptions, did not measure behaviour change, and included only 19 recently trained staff from one region.