'It Is of Course About Being Human Together': Co-Development of a Primary Progressive Aphasia Awareness Campaign to Enhance Understanding of Speech and Language Therapy.

The study had no control group or comparison campaign, so it cannot show that the campaign changed referrals or health behaviour. Feedback came from anonymous, self-selected respondents, and no demographic data were collected, so the results may reflect people already interested in PPA or speech and language therapy. The UK survey did not directly ask about changes in awareness and knowledge; respondents mentioned increased knowledge only in open responses. Only the UK feedback was analysed using content analysis, and international feedback was collected and analysed differently, so international relevance is limited. The campaign included many activities at once, including weekly emails, social media posts, podcasts, a parliament event and webinars, so the contribution of any single activity cannot be separated. The advisory group was small and not shown to be representative, and the authors note limited representation from socio-economically, linguistically and ethnically diverse communities. Costing covered UK provider costs for the project leads and additional UK costs, not international collaborator costs or cost per social media view. There is no benchmark for social media engagement or awareness day success in comparable campaigns.

Anna Volkmer is funded by an NIHR Advanced Fellowship award NIHR: 302240. Jason D. Warren reports grant support from the Alzheimer's Society, the Royal National Institute for Deaf People, Alzheimer's Research UK, the National Institute for Health Research University College London Hospitals Biomedical Research Centre, and a Frontotemporal Dementia Research Studentship in Memory of David Blechner funded through the National Brain Appeal. The authors declare no conflicts of interest.

Do not read the high ratings and webinar numbers as proof that the campaign increased referrals to speech and language therapy. The study did not measure referrals, and feedback came from anonymous, self-selected respondents whose demographics were unknown.