Involving Carers in Therapy for Adults With Intellectual Disabilities: A Systematic Review of Client, Carer and Therapist Perspectives.
Charlotte Farnsworth, Thomas Schröder
PMID 41257372WHAT IT FOUND
Carer involvement in therapy for adults with intellectual disabilities is a double-edged sword.
It helps clients practise skills between sessions and reduces anxiety, but can also stop them speaking openly. Clinicians should offer the client a choice about who attends and ensure carers are trained and consistent.
Key findings
01Clients reported that having a carer present could prevent them from speaking honestly about their difficulties due to concerns about privacy or judgment.
02Carer involvement was most beneficial for helping clients generalise therapy skills to daily life between sessions, particularly when the carer was consistent and motivated.
03Therapists and carers noted that inconsistent attendance and lack of understanding of the therapy model by the carer hindered the therapeutic process.
STILL TO COME
How it was doneWhat they foundWhat it means for SLPs
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What it does not show
The quality of the included studies was generally low, with only three studies reflecting on researcher bias. Screening, extraction, and synthesis were conducted by a single author, introducing potential subjectivity. Most studies focused on skills-based therapies (like CBT or DBT) rather than exploratory or trauma-focused therapies, so findings may not apply to sensitive topics. The majority of participants were White British and studies were mostly from the UK, limiting generalisability to other cultures. People with severe intellectual disabilities were largely underrepresented, as most studies focused on mild-to-moderate ranges.
Declared interests
The authors declare no conflicts of interest. The work was funded by Health Education England.
The easy way to misread this
Do not assume that carer involvement always improves outcomes or client comfort. The review found that for some clients, a carer's presence actively prevented them from discussing difficulties openly, and inconsistent carer attendance could disrupt the therapeutic process.
Summarised by AI from the full paper, without a clinician reviewing it. Check it against the source before it changes what you do. Read it on PubMed →