RNOtherJMIR nursing2024

In-Home Respite Care Services Available to Families With Palliative Care Needs in Quebec: Novel Digital Environmental Scan.

Aimee Castro, Gabrielle Lalonde-LeBlond, Zelda Freitas and 9 others

PMID 38625735

WHAT IT FOUND

Families seeking in-home palliative respite in Quebec face only 52 identified services, concentrated in Montreal, with sparse rural coverage, missing fees and eligibility details, and language barriers.

Key findings

01The scan identified 52 eligible in-home respite services for palliative families in Quebec, with the greatest concentration in Greater Montreal and only 1 service in Abitibi-Témiscamingue, Nord-du-Québec, Nunavik and Terres-Cries-de-la-Baie-James.

02Google search identified 40 of the 52 eligible services, and 26 of those 40 were not found in the Canadian Cancer Society Community Services Locator or L’Appui Resource Directory.

03Many service websites left out access details: 24 of 52 services did not disclose eligibility criteria, and 23 of the 27 fee-based services did not define or openly list fees.

STILL TO COME

How it was doneWhat they foundWhat it means for RNs

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What it does not show

This was a scan of internet listings, not a study of patients, families, or outcomes, so it cannot show that respite care helped anyone. The findings are limited to what organizations chose to publish online, and services that provide respite without using the word respite may have been missed. The search used only English and French, and only a limited number of results and postal codes were screened, so less advertised services may not have appeared. Search engine and database algorithms may have affected which services were found, despite steps to reduce personalization. Only some organizations confirmed the findings, and some website information was corrected after contact, so service features may be incomplete or inaccurate.

Declared interests

The only conflict reported is that a coauthor was a nurse manager at one of the palliative home-care organizations identified through the search.

The easy way to misread this

Do not read this as evidence that respite care improves patient or caregiver outcomes. The paper mapped online service listings, not people or outcomes, and many listings lacked fees, eligibility, availability, and language details.

Read it on PubMed →