SLPQualitativeAutism : the international journal of research and practice2019

Implementing systems-based innovations to improve access to early screening, diagnosis, and treatment services for children with autism spectrum disorder: An Autism Spectrum Disorder Pediatric, Early Detection, Engagement, and Services network study.

Sarabeth Broder Fingert, Alice Carter, Karen Pierce and 8 others

PMID 29633852

WHAT IT FOUND

Investigators of autism service projects said existing community relationships, site champions, and central technical support helped early screening, diagnosis, and treatment.

They faced barriers in slow systems, family engagement, provider time, and clinic culture.

Key findings

01All investigators reported that developing stakeholder relationships before implementation facilitated their work.

02Investigators identified four common barriers to implementation: inefficient systems of care, family engagement, provider attitudes, and organizational culture.

03Six of nine categories of implementation support strategies were used by all five studies.

STILL TO COME

How it was doneWhat they foundWhat it means for SLPs

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What it does not show

Only nine investigators were interviewed, so families, providers, and patients were not represented. The study did not test whether any innovation improved screening, diagnosis, or treatment access. The five studies used different methods and settings, so common themes may not apply to every service system. The investigators were describing their own projects, which may make barriers and facilitators more favourable than independent observers would report. No medical records or direct observations were reviewed, so the findings are perceptions rather than measured implementation fidelity.

Declared interests

The five studies were funded by the National Institute of Mental Health through R01 awards. The authors reported no conflicts of interest.

The easy way to misread this

Do not read these facilitators and barriers as evidence that any screening, navigation, or training innovation improves access to autism services. This study interviewed investigators about implementation, not patients about outcomes, and it did not test whether the innovations worked.

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