OTSLPQualitativeJournal of applied research in intellectual disabilities : JARID2026

'I Know Death': Perceptions and Attitudes Towards Death Among Middle-Aged Adults With Intellectual Disabilities in South Korea.

Jaehee Yi, Min Ah Kim, Seong Young Lee and 2 others

PMID 41995220

WHAT IT FOUND

Bereaved middle-aged South Korean adults with intellectual disabilities described death as frightening, and as a move to an afterlife where their parents watch over them.

Most wanted to live long and stay healthy; some said they would accept death calmly.

Key findings

01Most had never been taught about death or had it explained to them, and they described death itself as frightening and negative, and as a barrier to seeing loved ones again.

02Participants described death as going to an afterlife, where their deceased parents were no longer suffering and were watching over them, and said this belief brought them comfort and made death seem less daunting.

03Many wanted a long and active life and described exercise, a good diet and keeping familiar daily routines as the way to get there.

STILL TO COME

How it was doneWhat they foundWhat it means for OTsWhat it means for SLPs

Read the rest of this summary

You get three full summaries a month, free, and we do not ask for a card. Search, the TL;DRs and your library stay unlimited either way.

Already have one?

What it does not show

Only 21 people took part, all in South Korea, and the authors say the findings cannot be treated as one shared cultural picture or moved to other settings without care. Everyone had lost a parent, but the time since that loss ranged from 1 to 30 years, which may have changed how they remembered it. Religious belief shaped many of the accounts, and the study did not record how much participants spoke with family or staff, or what they had previously been taught about death. Participants' level of intellectual disability was not systematically analysed, although it may have shaped what they said. Recruitment was through disability organisations and their websites, so people already connected to services were more likely to hear about the study, and those who were isolated or without internet access were not reached. People who were comfortable talking about bereavement were more likely to volunteer, so the accounts may over-represent those who found it easier to discuss. The interviewers were researchers, and participants may have given answers they thought were wanted, especially about an emotional subject.

Declared interests

Funded by the Ministry of Education of the Republic of Korea and the National Research Foundation of Korea in 2022. The authors declare no conflicts of interest. The interviews come from a larger study whose earlier publication covered the same participants' bereavement experiences more broadly; this analysis of their views on death is new.

The easy way to misread this

Do not read the calm acceptance of death as a good outcome. Several of the people who said they were ready to die were exhausted by years of caregiving and hardship, and the authors warn this may reflect vulnerability or emotional fatigue rather than genuine acceptance, so it needs careful assessment rather than being taken at face value.

Summarised by AI from the full paper, without a clinician reviewing it. Check it against the source before it changes what you do. Read it on PubMed →