SLPQualitativeJournal of applied research in intellectual disabilities : JARID2025

'I Don't Think I Have Ever Worked Harder on a Case': Needs of Canadian Child Protection Workers and Parents With Intellectual Disabilities.

Munazza Tahir, Virginie Cobigo

PMID 39805567

WHAT IT FOUND

Child protection workers reported that parents with intellectual disabilities often kept custody when they had strong informal support, especially a stable partner.

Workers lacked training in disability accommodations and carried a heavy burden navigating fragmented services.

Key findings

01Most workers received no training in intellectual disability, forcing them to independently figure out communication and accessibility accommodations, which significantly increased their workload.

02Workers identified informal social support, particularly having a healthy and stable partner, as the most critical factor in helping parents with intellectual disabilities maintain custody of their children.

03Workers noted that parents often refused formal intellectual disability evaluations due to legal advice fearing it would harm custody cases, thereby forgoing access to essential developmental supports.

STILL TO COME

How it was doneWhat they foundWhat it means for SLPs

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What it does not show

The sample was small (11 workers) and self-selected, potentially biasing results toward workers already motivated to support parents with disabilities. Recruitment was hindered by agency gatekeeping, meaning the views of workers in more restrictive or different jurisdictions may not be represented. The study did not include the perspectives of the parents with intellectual disabilities themselves. Findings are specific to the social service structure in Ontario, Canada, and may not generalize to other regions.

Declared interests

The authors declared no conflicts of interest. The study was funded by the Social Sciences and Humanities Research Council.

The easy way to misread this

Do not interpret the workers' stated views that intellectual disability is not an isolated risk factor as evidence that bias is absent in the system. The study relied on self-reported attitudes from a small, motivated group, and previous literature cited in the introduction indicates that parents with intellectual disabilities are still disproportionately investigated and referred to fewer services.

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