How healthcare systems are experienced by autistic adults in the United Kingdom: A meta-ethnography.
Sarah Radev, Megan Freeth, Andrew R Thompson
PMID 38465626WHAT IT FOUND
Autistic adults in the UK described healthcare professionals often misunderstanding their needs, leading to misdiagnosis or inadequate support.
They reported that reducing processing demands through clear, written information, quiet environments, and predictable appointments helped them engage with services.
Key findings
01Participants reported that autistic characteristics were often misinterpreted as mental health symptoms, leading to misdiagnosis and inappropriate treatment such as antipsychotics for lack of eye contact.
02Autistic adults found verbal communication difficult when it involved rapid questions, vague language, or unexpected topics, preferring concrete, explicit, and written information.
03Sensory environments, including bright lights, noise, and physical touch during examinations, were frequently reported as overwhelming and distressing.
STILL TO COME
How it was doneWhat they foundWhat it means for PTsWhat it means for OTsWhat it means for SLPs
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What it does not show
The included studies were predominantly focused on mental health and diagnostic pathways, so findings may be less applicable to physical healthcare settings like general practice or dentistry. The review excluded autistic adults with learning disabilities, so the findings do not apply to that population. The studies covered different parts of the UK (England, Wales), and healthcare systems vary, so results may not be generalizable across all health boards.
Declared interests
The authors declared no conflicts of interest and received no financial support for the research.
The easy way to misread this
Do not assume that a patient's lack of eye contact, delayed responses, or literal answers indicate cognitive impairment or non-compliance. These may be autistic communication differences or sensory responses, and interpreting them as such without knowledge can lead to misdiagnosis and inappropriate treatment.