Helpers help people with intellectual and developmental disabilities and hypertension to understand their condition and the need to adhere to anti-hypertensive medication.
Deborah C Salzberg, Wanfang Zhang, Madeline Moran and 4 others
PMID 34625396WHAT IT FOUND
Coaching the family member or paid helper, not the person with intellectual disability themselves, was what raised knowledge about high blood pressure and why the pills matter.
Adults with IDD who got the messages directly showed no gain over the comparison group.
Key findings
01Adults with intellectual and developmental disabilities who received the education themselves did not know significantly more about high blood pressure than those who did not, at either follow-up.
02The people who helped them did learn more: Case Helpers scored significantly higher than Comparison Members at both follow-ups, and by the later follow-up higher than Comparison Helpers as well; the earlier Helper-versus-Helper gap just missed significance (p=0.06).
03The biggest gap at the start was that participants did not know high blood pressure usually has no symptoms, and about half did not know that 140/90 counts as high blood pressure or that 30 minutes of exercise on most days is recommended.
STILL TO COME
How it was doneWhat they foundWhat it means for OTs
Read the rest of this summary
You get three full summaries a month, free, and we do not ask for a card. Search, the TL;DRs and your library stay unlimited either way.
What it does not show
People living in group homes or professionally managed settings were never enrolled, because group home staff refused access. The authors say this removed 646 people, about 25% of possible participants, so the findings do not apply to your clients in supported or supervised housing. The people who joined were more likely to be Black and were about 3 years younger on average than the wider Medicaid population with IDD and high blood pressure, so the results may not carry over to everyone in that group. About a quarter of those who started, 25.7%, were lost by the third survey, so the later results come from a smaller and possibly different group than the one first recruited. Some participants likely struggled with the reading level of both the messages and the survey questions, even though the team worked on readability. Everything comes from one state's Medicaid programme, so it may not apply where eligibility rules and disability services differ. The only thing measured was knowledge. Whether people actually filled and took their blood pressure medicine, and whether their health changed, was not answered.
Declared interests
The authors declare that there is no conflict of interest. The text supplied gives no further funding statement or sponsor role.
The easy way to misread this
Do not read this as proof that the education programme got people taking their blood pressure medicine. The study measured knowledge only, and among the adults with IDD themselves the messages produced no significant gain over the comparison group. Do not credit the programme for the Helpers' higher scores either: Helpers scored better than Members whichever group they were in, and on the earlier follow-up the difference between the two Helper groups did not reach significance (p = 0.06).
Summarised by AI from the full paper, without a clinician reviewing it. Check it against the source before it changes what you do. Read it on PubMed →