Health literacy of the Deaf community: a scoping review.
Kang Suen Goh, Ryan Chun Chien Yau, Thisari Madhavee Dharmapriya and 2 others
PMID 42139001WHAT IT FOUND
Deaf sign language users showed lower health literacy than hearing people in all 11 comparison studies, with inadequate knowledge across many conditions.
Sign-language education raised knowledge, but follow-up evidence was limited.
Key findings
01Deaf participants had lower health literacy than hearing participants in all 11 studies that directly compared the two groups.
02The review found low health literacy among Deaf participants across most disease areas, with only a few studies showing adequate literacy.
03Educational interventions improved knowledge, but only five studies reported retention and none of those five used repetition.
STILL TO COME
How it was doneWhat they foundWhat it means for SLPs
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What it does not show
The review did not formally appraise study quality, so it maps the range of evidence rather than proving robust effects. Included studies used different definitions and measurement tools for health literacy, making direct comparison difficult. The search was limited to English, so relevant studies published in other languages may have been missed. Terminology varied across studies, and some may have used deaf, hard of hearing, or hearing loss in ways that do not clearly identify Deaf sign language users. Most studies compared Deaf participants with hearing participants, rather than examining differences within Deaf communities. Few studies focused on children and adolescents, so the review says little about younger Deaf patients. Intervention effects were mostly measured as knowledge gain, and only a small number of studies reported whether knowledge was retained.
The easy way to misread this
Do not read this as evidence that Deaf people have lower health literacy because of individual ability. The review attributes poor literacy to inaccessible health information, communication barriers, and healthcare system failures. It also does not show that sign-language education produces lasting knowledge, because retention was reported in only five studies.